Welcome to GBS/CIDP Support

The GBS/CIDP Support association is a charity whose purpose is to support Australians affected by Guillain-Barre Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN) and related conditions through
a commitment to individual and group support, provision of information and resources, education to the medical establishment and general public, and funding research into the causes and treatment options for these rare diseases.

...demystifying these diagnoses, providing up-to-date information, and offering emotional support —key elements in easing fears and uncertainty.

Kath Donaldson

"

"

About GBS and CIDP

GBS and CIDP are rare neurological conditions which cause the body to attack the myelin sheath surrounding our nerves, meaning that the message is not delivered to our limbs, causing tingling, pain, numbing and weakness.

Approximately 1 in every 80,000 people develop GBS in Australia each year.

Approximately 5 out of every 100,000 people have CIDP, which translates to around 600 individuals
in Australia at any given time.

The prevalence of MMN in Australia is estimated to be around 1.33 cases per 100,000 people.

Who are we?

We at GBS CIDP Support are a group of like-minded individuals who are patients with GBS and CIDP.
We are passionate about ensuring future patients (like you) do NOT suffer the same
fear, uncertainty and lack of information which we all endured.

Together, we decided to form an Australian charitable organisation where we could deploy
a national network of volunteers who also have experience in GBS, CIDP, MMN and related conditions,
to support new and existing patients and caregivers, raise awareness in the medical community and the general public,
and fundraise to support research into the causes and treatments for these rare diseases.

We will provide better access to information, resources, earlier diagnosis, and more
treatment options for Australians suffering from GBS and CIDP.

Volunteer Network

Our dedicated volunteers offer hospital visits and ongoing support to new patients across Australia.

Education Programs

We educate medical professionals and the community about GBS, CIDP, MMN,
and related conditions.

This body came with
a lot of Terms & Conditions
that I did not agree to!

So, you have GBS or CIDP - now what?

What happened, happened. You can’t change that. Special challenges like this allow for something special to float to the surface, something you may not have known about yourself if this hadn’t happened. It’s about letting go of your life plans. You started out as one person but a thing like this changes you and a whole new person starts to form. Until you let go, you’ll never realise your full potential.

You will battle your way through the pain and the cycle of grief.
That’s why they call us warriors. Learn to celebrate every
hard-fought battle, and every hard-won physical victory.

One day you will tell the story of how you overcame what you went through, and it will be someone else’s survival guide.

Help Support Us

Whether you are an individual,
a team or a business,
there are many ways you can support fundraising efforts to benefit sufferers of GBS and CIDP.